Categories
Definitions & Characteristics

Atmosphere – Snowflakes (Part 2)

[…] You describe introverts becoming rigid under stress.

Autistics who are under constant, intense pressure (as are many, by well-meaning parents and others who want them to function) become very rigid and black/white in their thinking, this is then taken as an inherent part of autism. If they are given less stress, their thinking ‘magically’ becomes more flexible.

Ettina

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[…] The closest analogy I can make is that what happens prior to initiation is like standing on the edge of a swimming pool with the intention of jumping in.

You know, that few minutes where you dip a toe in, check the temperature, adjust your suit and goggles, comment on how cold it looks, do a few arm windmills, bounce up and down, take a deep breath, then another. There’s no real point to all of those actions and the jumping in is inevitable. But not quite yet.

Cynthia Kim

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@neuroemergent_insurgent has an alternative perspective on EF (executive function).

She posits that EF is a set of values, not a set of skills.

Emmeline Tyler

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Autism parents often hear from the professionals that “kids with autism thrive on routine.” On the surface this appears to be true. Autism kids are drilled to comply with a certain routine and when the routine changes, they react loudly and sometimes physically. Ergo, they must need routine.

In my opinion, professionals like routine because it makes their jobs easier. I am not convinced that encouraging such rigidity is in a child’s best interest.

Amy Yardley

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To comply with a certain routine and needing to be prepared for something are not necessarily the same thing.

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is change a problem for autistic people?

They say Autistic people don’t cope well with change and unexpected events, insist on routine, and can be oppositional if they don’t get what they prefer.

It’s just not that simple.

Autistic people do struggle with change and unpredictability. But it’s not just because we don’t like change.

We struggle with change because of what it costs us in terms of increased demand on our sensory system, executive function resources and how it impacts on our energy budget.

If we are well supported during a change or unexpected event we find it much easier to navigate and to manage the increased demands the new situation places on our bodies, our processing and our emotional responses to all that.

Michelle Swan

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Self harm is complex and full of contradictions. Something I often remind people is that it is common in the animal kingdom. Animals and birds experiencing inescapable pain – loneliness, captivity in an unsuitable cage: too small, too stressful, too close to predator species, overcrowded, or physically ill and suffering, many will head bang, pluck their own feathers, chew or lick off their skin, tear out nails and claws. On one level, self harm is a nearly universal response to certain kinds of suffering. This is the context, the broad picture. We are mammals, part of the world, nervous systems wired this way.

Zooming right in, we get vast diversity in who, how, and why. Some find a single cause and many more a complex web of reasons, needs, struggles. […]

What it is not, and has never been, is the circle I hear so often. They self harm because they are mentally ill: we know they are mentally ill because they self harm.

We self harm because something is wrong, because of pain, because it is the best way we’ve found to meet a need we don’t understand or accept or can’t express.

Sarah K Reece

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In many instances, the discourse(s) of involuntarity governs autism as a condition. Most obviously, autism is not a voluntary condition – one doesn’t choose autism, per se.

Of course, framing autism as a neurological involuntarity is a false construct. After all, does anyone really choose their neurology? And yet, even though neurotypicality is as much an involuntarity as is mental disability or neurodivergence, the construct of involuntarity is culturally inscribed into autism as a condition. Autistics wrench and scream and rock their bodies, and they have no choice; they have no agency; they project little to no rhetorical or narrativistic purpose.

Within this passivity-centric framework, involuntarity might encompass shit smearing or body rocking; it likewise encompasses any act of communication, or what white-coat types might otherwise reduce to inappropriate behaviors; it encompasses embodiment; it encompasses how one dwells in the world. It signifies a lack of purpose, a lack of audience awareness, a lack of control over one’s own person – and under the banner of person, I’m including how we conceptualize mind, body, being, and self-determination. […]

Melanie Yergeau

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Categories
Spectrum

Lines – Glass (Part 1)

Question:

Why do some neurotypicals stim? Do they realize they are stimming?

They do. I don’t think they know they do, but they do. […]

Watch people overcome with emotion, an emotion that they can’t process, and they will stim.

Watch the news after a disaster or some horrible accident and you will see people holding their heads and rocking back in forth in grief.

Watch game shows when someone wins a big prize and look at their hands. Fingers extended, flat palms and shaking very fast in excitement.

Once you key into it, it is hard to miss.

Ben Rodda

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Kids love repetitive stuff. I used to work as a teacher assistant with 1-4th grade. Trust me with younger kids, if they like a video, they’ll see it 200 times in a row without getting bored.

LadyNoir93

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I know many adults without disabilities that enjoy child-like things like cartoons or toys. People with Intellectual and developmental disabilities are treated differently for liking the same things. It’s funny when I meet with non disabled people and they geek out over my little plushy wookies I carry as comfort items. It shows me that adults can enjoy things that children enjoy without people assuming that they are mental children.

Ivanova Smith

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The sheer amount of people who look at me and view me as ‘unresponsive’ when I’m very responsive, is impressive. And the things they do when they view me as unresponsive, seem a lot more like unresponsiveness than anything I do to them.

It’s like they only see a tiny, tiny number of the possible human responses as ‘response’. When those responses are present, even if totally fake and out of context and plastered-on to someone who’s really not all that responsive to someone, they view it as ‘responsiveness’. When those responses are not present, even if every other possible signal of response is happening, they view that as ‘unresponsiveness’. And they call us oblivious?

Mel Baggs

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I definitely know that lots of non-ASD people are terrible at judging how people with ASD are feeling.

If you just noodle around the Internet for a minute, you will find quite a lot of ASD people describing how someone thought they were nervous or sad when they were calm, bored when they were having a panic attack, uninterested in things they were actually very interested in, and so on.

In fact, sometimes police officers will harass or physically hurt people with ASD because they misinterpreted the person’s behavior.

Amanda Forest Vivian

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Hacking emphasizes that the divide between autists and non-autists is ‘symmetric.’ He attributes this divide to the fact that autistic people cannot intuit non-autists’ feelings and intentions, and vice-versa. “We are fellow humans in that we grasp each other’s intentions, feelings, and wants,” he argues. Because autists and non-autists cannot immediately grasp each other’s interiority, they see each other as alien. They do not share the “bedrock” of a common humanity, nor do they “share a form of life,” Hacking claims, borrowing two turns of phrase from Wittgenstein.

Hacking does ultimately try to gesture toward inclusion, and I do think that is laudable. However, I disagree with many of the premises of his argument, and I wholeheartedly reject the idea that autists and non-autists must be fundamentally alien to each other.

Caroline Narby

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(Why repeat lyrics?)

Seven time seven is 49. The pearl is in the river. Mr. Turkey is two times good for you. How much wood would a woodchuck chuck? I believe Fielding Melish is a traitor to his country. Badadada. Badadada.

Along with many many other stock phrases, these are integral parts of my thought process. Sometimes I say them out loud around people I am comfortable with. Each one indicates a type of thought and keeps me anchored enough in language to figure out what it is I need to say.

I suspect that NTs do this somewhat with songs, though they don’t usually respect or recognize these other forms. […]

Bev

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when I am feeling very bad, usually I’ll latch onto some song extra hard.

Noelle Stevenson

Is she NT? I don’t know.  Should it matter? It’s up to you.

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[…] folks will often assume the speech is meaningless if they know the speaker is autistic and they recognize that it’s an echo/reference. (As opposed to neurotypicals apparently being clever when they make references?)

Alyssa Hillary

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Words are but the vague shadows of the volumes we mean. Little audible links, they are, chaining together great inaudible feelings and purposes.

Out of context, Theodore Dreiser

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