Categories
Definitions & Characteristics

Atmosphere – Streaks (Part 1)

When we describe autism in terms of binaries, discourse communities, or circles, we construct a very unreal, [very black and white,] very us/them reality. […]

The typical autism essay, ironically, often proclaims that autism cannot be placed in a box, all the while concurrently placing autistics in boxes – LFA, HFA, mild, severe, verbal, nonverbal, etc.

And, I would also posit that autism should not be (because it cannot be) contained within tidied-up circles, which, despite being round, are themselves boxlike.

Discourse community theories fail to account for how these circles get created, get named, get claimed, get dismantled. In effect, discourse communities largely render their users passive.

In “Hybrid,” Bizzell claims,

These elements [discourse conventions] are so powerful that the discourse could be said to take on a life of its own, independent of individual participants; it could be said, even, to ‘create’ the participants that suit its conventions by allowing individuals no other options if they wish to be counted as participants.

Per this logic, I have been passively constructed into autism – by discourse. I have been passively constructed into aspiedom – by discourse. My other autistic commonplaces – or identity markers – have also been shaped or spawned by discourses: stimdom, speechdom, lack-of-eye-contactdom, patterndom, take-everything-literally-and-then-somedom.

But discourse alone can’t name these things, can’t claim these things. These facets of me, the diverse facets of other autistic individuals, of human individuals – autistic cousins or not – only fit within these circles because someone has squished them there, has proclaimed generalization as the new world order.

Low-functioning autism exists because the people who write the typical autism essay say it does: they make the circles; the circles themselves don’t independently create themselves; the circles aren’t material objects that exist or breathe or birth or contain people, all neatly sorted; the circles have human help. While I like to objectify humans and categorize stuff [very much], circles alone just don’t do the trick.

Melanie Yergeau

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There are many autistic people whose best method of communication is nonverbal. By which I mean, not speech, not writing. […]

Most people don’t know this because the current theories of autism all involve us being terrible at nonverbal communication. By which people mean, terrible at one specific kind of nonverbal communication that most nonautistic people are good at.

So for many of us – nonverbal communication, and the world of things outside of words, are our best way of communicating. Whether we can also use words or not. […]

It’s true that many people who are thought not to be able to use or understand language, actually are. And it’s terrible that they are overlooked. But in their desire not to overlook such people, many people claim that all disabled people who can’t communicate through speech fall under this umbrella. And that’s simply not true. In order to communicate with people who will never use words, you have to learn their language.

Mel Baggs

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‘Autism steals their voices.’

The idea of “voicelessness” presents itself as a convenient vehicle to get from autism to (living) death.

Voicelessness, here, does not refer primarily to literal variations of mutism […]

To be a voiceless autistic person does not entail an incapability of using language, but rather, an all-encompassing credibility gap.

Are autistic people, after all, expressing themselves, or merely their symptoms? Are they themselves expressing, or is autism? […]

When autism speaks, autistic people do not.

Voices here are only reserved for native speakers of a particular kind of symbolic language.

This language assumes and creates a normative, human subject, one who both comprehends and is comprehensible to other humans.

The faith […] is put in a shared, normative language, as a tool to fathom oneself and other people […]

This mechanism, while steeped in hyperbolic doubt, is intertwined with an essentialist humanism.

If the symbolic connects all humans to a network of intelligibility, the subjects who fall outside of this network must not be fully human.

Anna N. de Hooge

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Categories
Spectrum

Labels (Part 2)

I have never heard either of these labels [high-functioning and low-functioning] deployed to mean anything but “still not quite, you know…one of us.”

That’s what “____-functioning” means.  “Not one of us.”

Dani Alexis

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In addition to being ableist and grading against a neurotypical standard (which is its own, major issue), functioning levels attempt to reduce all the complex information about a persons abilities and needs over time and across a variety of contexts down to one dimension. That’s always going to be inappropriate dimensionality reduction, simplifying what we know to the point that it’s useless. Talking about low, medium, or high support needs isn’t going to fix this problem. Neither will talking about low vs. high masking as if either of those means a single thing. Those still use a single dimension, and you can’t shove enough information about what those support needs actually are, or what the specific effects of masking are into a single dimension for it to ever work.

Alyssa Hillary

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For many of us, engaging with an amorphous diagnostic group-think entity is the first step towards getting a solid conceptual foothold in who we are […] It’s also a first step towards securing a place in society. Especially societies which have low tolerance for divergence […]

It’s a slippery slope, isn’t it? […] You want it, pursue it, and then can be used against you. But if you don’t have it, you run the risk of getting stamped on. […]

Ultimately, it’s really up to each of us, how we engage with our identities, how we understand ourselves. How we navigate our social worlds.

VisualVox

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Semantically speaking,
         autistics are outsiders by definition.

Because autism, basically, is defined by divergence.

Based on two articles by Caroline Narby

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Just because it’s not information you need, that doesn’t mean it’s a useless word.

Alyssa Hillary

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Labels are Tools – They can be used for good or bad things

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When labels become boxes, that’s bad. But sometimes labels are road maps. Guidebooks. They show you how to find the information you’ve needed but never knew how to find or even if it existed.

Jess Mahler

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Calling disabilities by their right names isn’t about labeling, it’s about breaking isolation and making important things speakable.

Ruti Regan

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[T]hey think the problem was that they treated their child like they were intellectually disabled, and they weren’t.

But that’s not the problem.

The problem is that they thought their child was intellectually disabled, and so they didn’t treat them like a person.

Julia Bascom

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It would be great if labels like autism weren’t necessary.

It would be great if ableism didn’t exist, but that’s one hell of a hypothetical.

Ableism is an extreme and far-reaching problem that can’t be solved without labeling the specific disabilities of the people being harmed.

In a world where most people speak with their mouths and assume everyone else does too, I need the autism label to explain why typing is better. In a world of sensory assault, where “I don’t want to” is not a sufficient excuse, I need the autism label to justify my self-protection.

Alix Ditto Au

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Yes, labels may bring prejudice and ignorance, but they can also bring understanding and much needed support.

Laura Rutherford

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Categories
Spectrum

Labels (Part 1)

[…] as soon as someone says they’re on the autism spectrum, we categorize them and treat them differently.

Creigh, Caley

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It’s interesting the way that little label changes where the presumption lies.

If you’re NT and you decide to go explore a local park on a whim, you’re just indulging a whim. If you have ASD though, that’s ‘dangerous wandering’.

If you’re NT and you hire someone to do your cleaning or your lawn, you’re just freeing up spare time for yourself, but if you have ASD, you’re not ‘living independently.’

Cynthia Kim

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When I am open about being Autistic, I am handing people a weapon to punish me with. [Many times] my autism has been invoked during a disagreement. I have ended up leaving so many communities because I was told that I was only disagreeing because my autism meant I didn’t really understand. […]

Anytime someone wants to dismiss my opinion or experience, they point out that I am Autistic, as if that trumps anything and everything. […]

Telling people that I am Autistic gives them the opportunity to understand me better.

It also gives them the opportunity to dismiss anything and everything about me as irrelevant, deluded, pathological, unacceptable. No one has to provide a logical counter for anything I say because my words are Autistic words so they mean nothing. They are merely symptoms and can be disregarded.

Max Sparrow

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Like it or not, public perception of autism is not very diverse (yet). […] We need adjectives like ‘mild’ or ‘severe’ to help other people understand the extent of the autistic person’s needs.

Chris Bonnello

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There is no such thing as severe autism. There are autistic people.

Autistic people all have needs to be met. Just like everyone else.

These aren’t special needs, or different needs, they are human needs.

Autistic people need food, shelter, connection with other people, and to feel safe and valued. Just like everyone else.

Autistic people will communicate their distress when their needs are not being met. Just like everyone else. […]

They are not ‘severely autistic’– they are autistic and severely misunderstood, severely stigmatised, severely stressed, severely anxious, severely exhausted […]

Michelle Sutton

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My ‘high functioning’ child is not yet potty trained and still has to use diapers.  We support her and teach her, but we never shame her publicly or otherwise for being Disabled and on a different developmental path than other children her age.

Wait, does that make her ‘low-functioning’?  I get confused because she is also reading ‘The Hobbit’, which might make her ‘high-functioning’.

Romana Tate

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(See previous quote for context)

Deviating from the gist of the quote; it is interesting to note how – generally speaking – using diapers and reading The Hobbit are associated with respectively ‘low-functioning’ and ‘high-functioning’ in the first place.

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Part of the problem of the “labels are for jars” argument is that it inextricably links the label with diagnosis and pathology. It completely ignores the possibility that the label can be part of a disabled identity [when it is not] entirely defined by medical terms.

Kim Sauder

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A diagnosis is meant to give a reason. We can say, look, you have cancer. That is why you are feeling so unwell. You have depression. That is why you are so sad. You have this, so you are that. We expect a direct correlation, a cause, a salve to soothe us against all the things in the world that don’t make sense. The things that hurt us. A diagnosis tells us if A, then B. In this way, we define and we mend and we neatly slot the world into order. A diagnosis of disability tells the world where to fit a person, what they can and cannot do, how they will be loved and love in return. It designates relationships and builds hierarchies. From the moment my sister was diagnosed, people expected it would define us, too. Her and me. When they spoke they left so much room for the wrong words, such as caretaker and burden and problem, but too little for the right ones, such as sister and friend.

Out of context, Lauren McKeon

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Being assigned the label also became an experience of crossing over the threshold of ‘normal’ to ‘abnormal.’ […] They also continually compared their inner experiences and behaviors against an imagined standard of ‘normal.’

Out of context, Susan G. Goldberg

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