Categories
Definitions & Characteristics

Atmosphere – Snowflakes (Part 1)

Yes, I have social problems, but honestly I feel that the idea that autism is a ‘social disorder’ is putting the cart before the horse, and really missing the point. Autism is primarily a sensory and information processing and filtering difference, and the descriptions of autistics written by allistics are simply descriptions of the differences that allistics can see, and think are important.

Kirsten Lindsmith

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Differences in sensory processing do of course affect what might be called ‘social skills,’ for example many autistic people don’t integrate incoming visual information in a way that allows them to easily notice the tiny subtle differences in body position and facial expression that are used in neurotypical communication […]

Sensory integration also affects motor movements, and so many autistic people may not show the body language that non-autistic people expect for the way they are feeling. […]

Quincy Hansen

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In recent years the narrative has shifted from saying that autistic people feel too little – usually due to a purported empathy deficit – to saying we feel too much.

Perhaps the most worrying thing here regards how this new framing leads to autistic suffering being blamed on autistic oversensitivity.

In this regard it is worth drawing attention to a form of psychological domestic abuse sometimes called ‘gaslighting’. What this refers to is the systematic undermining of the victim’s sense of reality in order to make them think the abuse is their fault rather than the fault of the abuser. Very significantly, one of the core ways to do this is for the abuser to convince the victim that they are just too sensitive, meaning that any hurt they feel is not down to their abusive environment but rather due to their own inability to cope with the world. […]

With this in mind, I am wary of all accounts that frame autistic suffering and disablement stemming from us being hyper-sensitive. Far from reversing it, all this does is make the pathologisation of autism more subtle, more hegemonic.

In fact, the issue is that the sensory world is designed for the neurotypical, and so has by and large failed to accommodate the autistic sensory-style. That is, whilst it is true that we suffer from ‘too much information’, this stems from the neurotypical-centric way in which the world is organised – not due to how we process the world as such.

Robert Chapman

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So I’m sort of bad at figuring out how I feel about things, or just how things are, objectively. This is probably due to growing up with gaslighting although I also think that not being able to identify your feelings is supposed to be normal for people with ASD.

Although maybe it’s normal for people with ASD as a result of gaslighting.

Amanda Forest Vivian

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[…] But it is also a context where many of the things – such as eye contact and physical contact – often used by parents to show affection for their children either panic us or cause us physical pain, and where our ‘emotional growth’ might be measured by others in terms of how much we can deaden our bodies and emotions and allow ourselves to be subjected to terror and pain on a regular basis.

Imagine growing up somewhere where to be hit upside the head and locked in a room with a large predatory animal are the two highest forms of affection, and your emotional development is gauged on how well you learn to put up with those situations.

To people who experience certain kinds of touch as pain and eye contact as a predator-style threat, that is some part of our experience growing up. And that is an experience we can have in the most loving and caring of families, if our families don’t understand what those experiences feel like to us (and not all of us show pain and discomfort by pulling away, either, so it’s not always possible to gauge our reactions by that sort of thing).

Mel Baggs

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Neurotypical kids’ social development is fostered by feedback from their parents, who mirror their behavior and thus model reciprocal interactions from an early age. As Morton Ann Gernsbacher and her colleagues pointed out, autistic babies don’t give the usual cues their parents are expecting, and the parents don’t necessarily mirror them or give them the social feedback that helps neurotypical babies.

So how much of an autistic person’s social disabilities come from their own characteristics, and how much from early differences in their interactions with caretakers?

Emily Morson

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culture, class and disability play such a huge role in how we show emotions

Mel Baggs

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Many autistic traits are a result of being so in tune with other people’s energy that it literally hurts.

Shutting down to others emotions and taking them on without discrimination are two sides of the same coin.

Briannon Lee

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Categories
Definitions & Characteristics

Stories Analogies

Extra section related to:

Sparrows and penguins

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Writing and speech

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A dog’s new kitten

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Thinking about autism & philosophical models – Poems: Moonstruck, Breath, Monster, Frog Prince

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Categories
Spotlight

Truth Beacon – Advocacy

“Shut up and listen to marginalized people” isn’t quite the right rule […] We need to do better by each other, and start listening for real.

Ruti Regan

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[…] The whole thing is set up in a way where the only way to move forward is to find something to oppose and devour. There is never a point where the way you do things is good enough. You have to find more and more words and ideas to oppose. Words and ideas that mark who is in the know, and who is bad. These things constantly change.

[…]

Within this culture, you stop noticing your surroundings. Instead, you see a network of lines representing various power dynamics, bad words and ideas, good words and ideas, and the way this community responds to them. You stop being able to see that this is not the only way to respond to injustice.

Mel Baggs

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[It’s possible that one who] outwardly celebrates the diversity in labels, doesn’t necessarily celebrate the diversity of thought – not seeming to grasp that the two by necessity has to go together. A group of diverse people would take different routes to achieve a purpose. They would have different ideas on how to do it, when to do it.

potteresque-ire

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[…] Autonomy as a value of deliberative democracy is contested by non-disabled family members who advocate with their disabled family members in order to portray the interdependency of their interests. Charlie’s experience thus gives new meaning to the value of reciprocity in deliberative democratic theory, moving it away from mutual competence towards mutual dependence.

Stacy Clifford

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People everywhere, every day are trying to navigate {many} kinds of dilemmas, and {some of the time} are doing so in a culture that refuses to discuss {them}.

Partial quote, Sarah K Reece

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When new ideas emerge in society there is usually discussion about them. It’s a sound general principle –  the best way to evaluate new ideas is to explore them critically and freely.

{Plenty of} issues […] are of importance to society as a whole. […] Surely we can agree that {people, especially the referred groups} should have the right to discuss it?

This must be done in an atmosphere of mutual respect in which anyone is free to critically discuss anything they wish, using whatever (respectful) terminology they choose.

The underlying issues, {redefinitions, and introduction of new concepts} must be seen for what they are: nobody’s exclusive property.

Partial quote, Jonathan Best

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In the same series:

Categories
Spectrum

Blossoming

Popular saying:

If you’ve met one person with autism, you’ve met one person with autism

Stephen Shore

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Autism […] involves varying levels of disability, depending on both the situation in which an individual is placed, and the expectations that are set.

Kirsten Lindsmith

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Just as neurotypical people aren’t uniformly skilled at everything, autistic people have varying levels of competence in different areas of our lives.

Cynthia Kim

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[…] you can be excellent at one thing and barely coping at another. We simply can’t make such a sweeping generalisation of someone’s ability to function.

Bec Oakley

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[…] There’s a related problem where autistic people will hear something from another autistic person, and assume that they have to be similar to that other autistic person.

Mel Baggs

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If you look around the autistic community you’ll see artists and computer programmers and teachers and writers and engineers and activists and baristas and stage managers and linguists and mathematicians and speech therapists and managers and social workers and scientists and athletes and musicians and poets and sales people and business owners and vet techs and moms and dads and grandparents and students […]

Cynthia Kim

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Many people outside the autism community don’t understand the breadth of the autism spectrum, or the effect experience, age, and environment has on our development.

Ashia Ray

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There is a whole spectrum of, very often,

reasonable [and relevant and meaningful] responses [and motivations] to unusual experiences

Partial quote, Elizabeth Bartmess

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Writing Autistic Characters: Behaviorizing vs. Humanizing Approaches

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Autistic people are sons and daughters, husbands and wives, mothers and fathers, coworkers and employees, students and teachers, friends and relatives, neighbors and community members. […] Autistic people have different abilities, different needs, different interests, and different personalities.

Autistic Self Advocacy Network

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Autism doesn’t make us better than other people, and it doesn’t make us worse. We’re not subhuman, and we’re not superhuman. We’re just people.

Ruti Regan

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We’re autistic, we’re human, get used to it

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Think about it this way: is there a one-size-fits-all description that sums up what it means to be human? Of course not, but does that put anyone off trying to describe it? No; instead it inspires people to explore every aspect of the human condition, doing their best to unravel its mysteries in new and intriguing ways, in the hope of giving us a deeper understanding of who we are.

Helen Wallace-Iles

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Extras: